Healthline wrote me and asked me while I hadn't used this. I should be proud. I felt a little weird posting it, like a braggart, but I also feel immense gratitude for being lauded for simply sharing what my multiple sclerosis looks like. It is solely meant for the people on the fringes who are scared. You will be ok. Take my hand. Let us talk. I will listen. You aren't alone. Eternally grateful for the people they help and these people who feel invisible and have no idea how they help me. Thank you to Healthline for seeing this and also noting how important music is in all this. For me,music is big.
Know, I may have needed the award money, but I donated it after we discussed (my husband and I) and we donated to a group that helps social justice - it went to help the working poor.We never regretted it.
We also broke 1800's in like today on our FB Fan Page today. I remember when 300 likes was my goal. The blog now has 5,055 followers and a book and another on the way, AND friends who are invested and connected who are now a part of this dream.
My victory is theirs and their's mine. We're winning! I am not quadriplegic yet. I have my faith and my savior, I have my family and those saviors, I have my friends who are also saviors. I have this dream and these arms around me.
Also, my friend Siobhan m=wrote me concerned about someone newly diagnosed. Please tell her it will be ok and please let her know we are winning. This is a slow disease and the miracles I have seen in the last seven years are so, so promising. And in between we manage. Just like every other human must do for whatever their "MS" thing is. Not everyone has MS, but we all have something.
We learn to manage to navigate the world with MS, in a slightly different, hella smarter, way. Your love will be okay. And I am here, for anything, for all of you 24-7. The blessing has always been, and always will be, mine.
PS- As for the answer to the million dollar question -- what do you say when they tell you of their new diagnosis? Here goes: I don't want know what the right thing to say is, but please know I am here and will follow your lead. Whatever you need, please trust me enough to let me know how to help and in the meantime I am going to educate myself on the topic because I care and want to know how to help you. I'm here.